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Roche Starts Early Stage Clinical Trial in Down Syndrome

* Reuters is not responsible for the content in this press release

 

Fri Sep 9, 2011 9:38am EDT

 

~ First potential therapy designed to improve cognition and adaptive behavior in individuals with Down syndrome ~

PR Newswire

BASEL, Switzerland and NUTLEY, N.J., Sept. 9, 2011

BASEL, Switzerland and NUTLEY, N.J., Sept. 9, 2011 /PRNewswire/ -- Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced the initiation of its first Phase 1 clinical trial to investigate the safety and tolerability of a molecule designed to address the cognitive and behavioral deficits associated with Down syndrome.
"There is currently a large unmet medical need for the treatment of cognitive impairments in individuals suffering from Down syndrome," comments Luca Santarelli, Global Head of Roche Neurosciences Disease Translational Area. "Our strategy at Roche neurosciences is to specifically address these serious conditions that have no approved, effective or safe treatment. This is why we have a strong commitment to neurodevelopmental disorders, including genetic disorders like Down syndrome or Fragile X, as well as autism spectrum disorders."
Enhancing brain functions such as cognition and language in individuals with Down syndrome holds the promise to help these individuals conduct a more independent life. This may result from the improved ability to carry out every day's practical tasks such as finding an apartment, maintaining a job, or having a more fulfilling social life. These improvements can have a significant impact on functioning and quality of life of Down syndrome individuals as well as help reduce the burden for families, caregivers and the society.
"This study will target only adults between 18 and 30 years old, but we believe that an earlier intervention in Down syndrome has the potential for a greater medical impact," says Paulo Fontoura, Head of Translational Medicine in the Roche Neurosciences Disease Translational Area. "While we are still at the early stage, we are confident that our drug's mechanism of action can potentially open the door to further promising investigations in upcoming years."
Based on animal models, an imbalance between excitatory and inhibitory neurotransmission has been proposed among the underlying causes of altered brain function in individuals with Down syndrome. Roche's investigational drug is being assessed for its ability to address this imbalance by targeting the GABAergic* system.
*GABA: gamma-amino butyric acid
About the study
This placebo-controlled study will assess the safety and tolerability of the investigational drug in individuals with Down syndrome. It will recruit up to 33 individuals in one or two countries. For more information on the study, access the Roche Clinical Trials Protocol Registry and Results Database:  http://www.roche-trials.com/
About Down syndrome
Down syndrome is the most common genetic cause of intellectual disability and developmental delay, and affects one in every 700-1000 newborns. Also called Trisomy 21, this condition occurs when an individual has three, rather than two, copies of the 21st chromosome. This additional genetic material causes some impairment of cognitive ability and physical growth, and is often associated with other complications ranging from neurological and cardiac defects to hearing and vision problems. It is now thought that many people with Down syndrome are more likely to develop Alzheimer's disease as they age.
About Roche
Headquartered in Basel, Switzerland, Roche is a leader in research-focused healthcare with combined strengths in pharmaceuticals and diagnostics. Roche is the world's largest biotech company with truly differentiated medicines in oncology, virology, inflammation, metabolism and CNS. Roche is also the world leader in in-vitro diagnostics, tissue-based cancer diagnostics and a pioneer in diabetes management. Roche's personalised healthcare strategy aims at providing medicines and diagnostic tools that enable tangible improvements in the health, quality of life and survival of patients. In 2010, Roche had over 80,000 employees worldwide and invested over 9 billion Swiss francs in R&D. The Group posted sales of 47.5 billion Swiss francs. Genentech, United States, is a wholly owned member of the Roche Group. Roche has a majority stake in Chugai Pharmaceutical, Japan. For more information: www.roche.com.
SOURCE Roche

First animated series with a character with Down Syndrome

  

Target picks up Punky, will give half of royalties to charity
06/09/11
Target Entertainment has picked up rights to Punky, the first animated series with a character with Down Syndrome as the lead character, and will give half of sales royalties to a Down Syndrome charity.

The 20x7mins 2D animated series is produced by Ireland's Monster Animation and written by Andrew Brenner, best known for creating Humf. It follows the everyday adventures of Punky, a six year old who lives with her mum, brother, granny and pet dog.

The show has had strong reviews since debuting on Irish free-to-air broadcaster RTE and Target Entertainment will launch it internationally at MIPCOM Junior. Half of sales royalties will be donated to Down Syndrome Education International, which pioneers inclusion at schools for all children with Down Syndrome.

Target CEO Alison Rayson told TBIvision: "Punky is such an important series for all families with children who have learning difficulties. Punky shows the world that having Down Syndrome is not a negative thing and that children with Down Syndrome can have as fulfilling and regular a life as those without."

Gerard O' Rourke, Punky's says: "Punky is not a Down Syndrome person, but a person with Down Syndrome. If we can pass this message to our next generation through Punky then we have created a very worthwhile TV series".




                 

Punky

     

Think SPRING!!!!

Flower Power! is going to power the Charmers all the way WORLDS April 2012, with YOUR help!!

Please help us by placing an on-line for beautiful spring bulbs that will be sent DIRECTLY to YOUR door in time for fall planting!!!

Here's How You Can Help:

Our organization needs your help. The Club Layton Charmers Cheerleading team has earned a place to compete at the World's Cheerleading Championship in April in Orlando, Florida. Our team is made up of 17 young athletes who are differently- abled. There are many different disabilities represented including Down Syndrome and Dravet Syndrome. This team helps these children develop a lifelong love of fitness, gives the kids the skills needed to do things on their own to the best of their abilities and fosters an environment of teamwork and inclusiveness. This is a once in a lifetime opportunity. With your support, you can help make this dream come true. Our team receives 50% of all profits from the bulbs sold. Thank your for your support!

Want to be a part of making MAGIC?

Support Charmers with your Avon purchase!!!

Club Layton has been given the opportunity to join up with Avon. For every campaign that runs, and if we get at least 3 orders we will receive 30% profit from the total order (minus shipping and tax). If you order $30 or more you automatically receive free shipping. Please place your orders through the following link www.youravon.com/dwartell  and I will also remind you when the next campaign is coming up. The campaigns run 2 weeks long.  Use the code clublayton12 when you check out.

NOTE: If you use Facebook you can also copy this post and put it on your page.  The more orders we get the more money$$$$!!!!

Here are the campaign time frames:

CAMPAIGN	FIRST DAY	LAST DAY
C11	3-May	16-May
C12	17-May	30-May
C13	31-May	13-Jun
C14	14-Jun	27-Jun
C15	28-Jun	11-Jul
C16	12-Jul	25-Jul
C17	26-Jul	8-Aug
C18	9-Aug	22-Aug
C19	23-Aug	5-Sep
C20	6-Sep	19-Sep
C21	20-Sep	3-Oct
C22	4-Oct	17-Oct
C23	18-Oct	31-Oct
C24	1-Nov	14-Nov
C25	TBD	TBD
C26	TBD	TBD

No matter where you live, there is a restaurant near you!

$50 Resturant Gift Certificate for a $20 donation!

If you donate $20 you will get a $50 gift certificate to your choice of 18,000+ restaurants. Check the restaurants page for participating restaurants near you.  

Thank you making MAGIC HAPPEN!!!!!

Would you like to assist in a little Magic??

Help a Charmer compete at WORLDS by donating to the  Walk using the donate button right beneath the slide show!!! You will be creating MAGIC in an athlete's life!!!

Charmers is taking NEW members! BOYS and girls!

Soccer is soaring to new heights!!!

Soccer season officially starts Saturday March 5th and due to the outstanding coaching done by Three Lions we have had to add another team in order to accommodate all the players who signed up! We couldn't say no to all the hopeful soccer players! There are currently TWO openings! These do not last long- we had three this morning!
If you are thinking about it, act on it or the spots will will be gone . E-mail clublayton@gmail.com if you have a child between the ages of 8-15 ( can NOT turn 16 in 2011) who would like to play soccer with Special Olympics!
We have a number of older kids/young adults who are looking for more members to start a Sr team. Let us know if you would be intersted in that as well. We need MORE players for that age group!

Boogie Fever!!

Sequins, flower power, disco balls,lots of big red hearts, great (healthy) food and awesome friends made for a funky night of dancing!! We did the Electric Slide, the Bump and more!

We had THE most beautiful lay out of food! And not a sugary cupcake in sight!!

Our parents are the BEST!!!

The beautiful setting seemed to bring out the best party manners in all the kids!!

A truly great night was had by all.

Thank you to everyone for making it happen... from all the parents and kids who helped decorate, plan, make food, teach children dance steps, and donated items, to Coach Kelley for being such a huge support to Club Layton and a special thank you to Coach Gary for mounting that disco ball and the entertainment he provides just by being himself.

What an incredible joy it is to watch such a large group of people come together to create such fantastic events for children!!!

You guys ROCK!

Feb 26, 2011

The People Who 'ARE" by Dave Hingsburger

It's in the press again. I search to find out the context of the word. I see debates all over the web, people bemoaning the 'politically correct' and the 'word police' and making ridiculous claims about having to ban the concept of a 'fire retardant'. Last I looked there's never been a protest about products that protect from fire. Last I looked there's only ever been protests about the use of a word that demeans a group of people.

No matter what the fearless defenders of freedom of speech say, there is a huge difference between a word to describe something that slows fire and someone who learns differently. There's a huge difference between a thing and a person - but, no, maybe not. After reading their diatribes regarding their freedom to spit out hurtful words, they may, really, not see people with disabilities as fully human with a human heart capable human hurt.

People mock the concept of respectful language regarding disability. People make odd arguments about the latest gaffe by ... no, I won't say her name here ... they say 'she was saying that of herself not anyone else' - um, so? The word she used was one referring, not to a commercial product, but to an oppressed minority. Yet the debate rages on and the fierceness of the attack by those who are proponents of the use of hate language are both hysterical and who often purposely miss the point. One wonders what's at stake - their personal liberty to hurt others?

It's time to recognize that the 'R' word is an attack against who people with with intellectual disabilities 'are', it is an attack against the group that they belong to. It is like other words that exist to slur an entire people, unacceptable. The fact that people do not see the seriousness of the word and the attack it represents is simply a result of the fact that they do not take the 'people' who wear that label seriously. The concerns of those with intellectual disabilities have always been diminished and trivialized. There is a sneaking suspicion that they 'don't understand, poor dears', that they 'miss the point, little lambs' so therefore their anger need not be feared as justified.

To read the rest of this outstanding blog and more from Dave Hingsburger, visit hs Blog Rolling Around in My Head

Tone and Tumble

Coach Jimmy has the kid's working on agility, core strength, balance and specific tumbling skills. It's a challenging class! But also simple to modify for those who need to ease into it. Come join us EVERY Friday, 5-6pm. We do not have sessions, so you can drop in and out as you wish. We are accepting donations to pay Jimmy!

Dancing!!!

Last fall we had the first of what we hope to be many more dances at Club Layton! Mary Noonan came to teach us real square dancing and we were all do si doing our way around the gym in no time while giggling with friends and having a great old time!!!

We are hosting our second dance Friday February 18 6:30- 8:30. This time it's a Valentine Disco Dance! Come join us for what is sure to be lots more fun and giggles!!!

Don't tell the kids that all the while they are having a great time, they are also learning social skills! One of the great things about Club Layton is that we are not a 'special' place just for people who are differently-abled. We believe all kids deserve a place alongside their peers in the community. We also believe children learn best by actually participating in typical kid activities, not being placed in an artificial environment and then taught social skills. Learning by doing is how we all learn!

Come join us as we learn life skills by living our lives!!!

The Magic Continues.....

The Charmers Cheer Team has earned a place to compete at the Worlds Cheerleading Championship to be held on April 28 & 29, 2012 in the Sports Complex at Disney World in Orlando, Florida!!!

A huge thank you to Kelley Layton from Layton Athletics and Champion Spirit for helping to make this magic happen!

Also for all the donations we have already received in the effort to make sure every single athlete from out team makes it there! One of our Jr coaches donated her $200 scholarship money to help!! We will be having many, many fundraisers during the next year! Right now we are selling World's Famous Chocolate bars! Available at the gym and various places around the area!!